twitchy fingers

since I'm surrounded by experts i figured i would take this opportunity to ask a question

the answers to my question have to contain the following

don't need medical advice from the professionals
you'll be fine , nothing to worry about
your doing the right thing ignoring this, it'll go away on its own

ok here goes...

about a year i suppose i have been getting twitchy fingers, it comes and goes, i can go weeks without it at all, sometimes its quite violent, to the degree everyone thinks I'm joking and doing it on purpose, it can be one finger or multiples, its not painful at all, I've kind of decided its not parkinson as i assume that would be constant, as my bg was mid 20's for an unspecified amount of time before diagnosis, would you say its possible it could be nerve damage for DB? if so once bloods are more reasonable like they are now, would any nerve damage halt or improve?

im not going to the docs, or will i mention it to them, i don't need the hassle on my travel insurance forms apart from anything else, I'm not worrying about apart from a tiny bit, certainly isn't spoiling my life

thanks if you have any ideas of what this is in advance

Difficult one that dude as all sorts of conditions including neuropathy.vitamin and mineral deficiencies,mainly Calcium, Magnesium, B12 and Iron,too much caffeine and even kidney disorders can cause this plus many others of course...I know you're LCHF but is your diet limited in any way these days? i,e not getting enough green veg,eggs or meat.

thank you mate, limited? lol uhuh

never paid any attention to vitamins before

kidney eGFR has been stable at 60, they don't care about this

I've only had one blood test in 18 months but never got the results so don't really know what it is now

too much caffeine is new so can't be that lol

veg, meat and eggs i eat by the bucket load, in fact i eat little else

Andy12345 wrote:since I'm surrounded by experts i figured i would take this opportunity to ask a question

the answers to my question have to contain the following

don't need medical advice from the professionals
you'll be fine , nothing to worry about
your doing the right thing ignoring this, it'll go away on its own

ok here goes...

about a year i suppose i have been getting twitchy fingers, it comes and goes, i can go weeks without it at all, sometimes its quite violent, to the degree everyone thinks I'm joking and doing it on purpose, it can be one finger or multiples, its not painful at all, I've kind of decided its not parkinson as i assume that would be constant, as my bg was mid 20's for an unspecified amount of time before diagnosis, would you say its possible it could be nerve damage for DB? if so once bloods are more reasonable like they are now, would any nerve damage halt or improve?

im not going to the docs, or will i mention it to them, i don't need the hassle on my travel insurance forms apart from anything else, I'm not worrying about apart from a tiny bit, certainly isn't spoiling my life

thanks if you have any ideas of what this is in advance

Paul's put forward some good points and it could well be a deficiency of some sort, even though you don't want to see your doctor maybe worth considering if the problem persists or worsens

Keep us updated Andy

"the answers to my question have to contain the following

don't need medical advice from the professionals
you'll be fine , nothing to worry about
your doing the right thing ignoring this, it'll go away on its own"

When did I ever do what I was told?

You need to see a specialist and fast. Your kidney GFR is very low as I am sure you know. A diabetic with a low GFR should not be eating a high protein diet. You should be getting regular blood tests, especially for those kidneys. You said "kidney GFR has been stable at 60, they don't care about this" find someone who does care, even if you have to pay for a private consultation.

You are way too young not to take this seriously, don't be put off because you have not been treated properly in the past.

Expecting a kicking in the morning, but hey, what's new.

Edit just remembered and found this from and old blog post.

"PeppiB, with less than 30% kidney function, his Doctor informed him his life would be cut short. Peppi started low carbing and his kidney function went up to 70% very quickly. His Doctor was stunned and amazed."

That guy went very high fat not high protein, he was a guy me and Graham helped about six years ago.

Thank you guys

when i say a steady 60 and they don't care, i mean

when dx with diabetes, i of course had all the tests and my gfr was 60, along with all my other results i researched it and decided this wasn't good, so i ask the doctor... "no thats fine" ok so i research it again and still didn't sound good, saw a different doctor, same result, so i ask the diabetic nurse armed with a printout, she said no they don't even treat that, or worry about it, a year late i have more tests, gfr 60 again, i starting weeing ketchup, end up with kidney stones, which I'm still enjoying, but anyway i go to a&e and they ask me the questions while trying to find out why I'm weeing ketchup and so of course i say, i think i have some kidney damage/disease, he asks who told you that? so i say well I've had these results and i researched it, so technically no one told me, he said you don't have either, we don't even worry about numbers like that, so hence i say they don't care, i did have a blood test a couple of months ago, the full range, i haven't ben contacted about the results, so i assume all is well, I'm very much of the opinion, if they leave me alone, ill leave them alone

tbh i was hoping for someone having suffered this minor ailment for years and it didn't get worse, mine isn't getting worse, but hey ho

Hi Andy

I have just checked my eGFR results online and they have always been >60

The blurb in the help window pops up to say:

"The estimated Glomerular Filtration Rate (eGFR) is a new measure of how well the kidneys filter the blood. A normal level is above 60. The eGFR is then calculated from your age, sex and blood creatinine level. An adjustment to the calculation is needed for people with African-Caribbean origin. The lower the level the less well the kidneys filter the blood. When the eGFR level reaches 15 or below the kidneys may be about to fail. As we get older it is natural for our eGFR to fall slightly."

Have another look at your results and check if they are 60 on the nose or >60

As for your twitchy fingers - go to the doc!  

Thankyou Ms Avocado

It was 60 on the nose a year apart, i half expected it to get better as id heard of people getting huge improvements doing lchf and id done it for a whole year when i got the test done again, I've just recently had it done again but don't know the results, this is dumb as i only have to pop in the the docs and get my printout, so i will tonight if i get home early enough

twitchy fingers, i don't want to ask the doctor as he may diagnose me with something, that can't be improved but once I'm diagnosed, be it parkinsons or nerve damage or whatever will effect medical insurance and such like, for example, parkinsons means i have to stop driving, I'm going to the states in august again and don't want to fork out 500 quid more for insurances etc etc, it isn't a big problem, i just sit at night watching the telly playing my imaginary piano hehe, so I'm not fussed about it, i just wondered if you clever people would have an answer without the quack getting involved

thankyou

If you wont go to the doc, check out a long post about neuropathy by Omnipod on the big forum. He mentions lots of ways to improve symptoms. I took two of the vitamins he suggested (B12 and ALA) and it has stopped my stabby feet.

If you are still twitchy after that, go to the doc!!

ok thankyou ma'am

oh i cannot search his posts as I'm dirty lol would you have a link please?

a beautiful person sent it to me, very interesting

this is the link i was looking for in case anyone else is interested and not seen it

https://www.diabetes.co.uk/forum/threads/neuropathy-update.69662/

assuming this was the one you meant, thank you again mwah

I always get the twitchy finger thing when it's my round !

Edit, hope you do eventually find someone clever to help you properly. I bet mine didn't....

but yours made me laugh, which is much better than a cure

Andy12345 wrote:Thank you guys

when i say a steady 60 and they don't care, i mean

when dx with diabetes, i of course had all the tests and my gfr was 60, along with all my other results i researched it and decided this wasn't good, so i ask the doctor... "no thats fine" ok so i research it again and still didn't sound good, saw a different doctor, same result, so i ask the diabetic nurse armed with a printout, she said no they don't even treat that, or worry about it, a year late i have more tests, gfr 60 again, i starting weeing ketchup, end up with kidney stones, which I'm still enjoying, but anyway i go to a&e and they ask me the questions while trying to find out why I'm weeing ketchup and so of course i say, i think i have some kidney damage/disease, he asks who told you that? so i say well I've had these results and i researched it, so technically no one told me, he said you don't have either, we don't even worry about numbers like that, so hence i say they don't care, i did have a blood test a couple of months ago, the full range, i haven't ben contacted about the results, so i assume all is well, I'm very much of the opinion, if they leave me alone, ill leave them alone

Don't think a GFR of 60 is to bad Andy, and as your last blood test results must have been ok I would not worry to much.

 I might be wrong but from what I can recall @Two Collies has a GFR <40

I'd try the B12 and alpha lipoic acid, or alternatively

neuropathy cocktail

It's possible you have some neuropathy which is healing and temporarily making symptoms worse as the nerves are regrowing and reconnecting. Equally possible though that it's something completely unconnected. What I wouldn't like to say, but there's something called Benign Essential Tremor, which caused my mother's head to nod and wobble gently for several years before mysteriously curing itself again, and there's ParkinsonISM rather than actual Parkinson's disease.

It's the sort of thing where a CLUEFUL doctor would be useful but I gather like so much of the population you lack one of them.

Thankyou Chris

I see "regrowing" "curing itself" these are all consistent with what i was hoping for, I'm disregarding all other posts before yours and can sum up what your saying as "you'll be fine"

Thankyou mate

Well you might be!

When I had my gallstones out they did it the old fashioned way, opened me up from navel to ribcage and dived in with both hands. For years after the operation I was plagued with annoying twinges as the nerves regrew around the incision and I couldn't bear to be touched there as it felt like the worst kind of tickling. 

It was much the same later as I had developed neuropathy in my feet and hands to the extent of tingling, numbness and "feet going to sleep" after eating carbs. It took significant time for this to resolve with low carb and as many others report, while the nerves are regrowing the symptoms may get worse before they get better.

Keep an eye on it though as it could have many causes.

Cheers